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HIV patient names to be tracked in all 50 states by years end
The Associated Press
CHICAGO The names of people infected with HIV will be tracked in all 50 states by the end of 2007, marking a victory for federal health officials and a quiet defeat for AIDS advocates who wanted to keep patients names out of state databases.
Vermont, Maryland and Hawaii, the last states not tracking the names of HIV-positive people, are quickly moving toward adopting names-based surveillance. Washington, D.C. and eight other states, including Montana, Washington and Oregon, began collecting the names of HIV patients last year. Massachusetts switched in January.
The states are bowing to federal pressure so they wont lose money for medications and health services for patients.
This is the first year federal funding has been tied to names-based surveillance of HIV. More than $1.4 billion in federal money will be distributed this fiscal year based on new formulas that include numbers of people with HIV counted by states using names. In some states, including Illinois, millions of dollars are at stake.
Thats why advocates say theyve quit fighting although they still worry that collecting names will deter some people from getting tested and seeking treatment, and about the possibility of names being released due to security breaches.
I have patients who are very high-profile individuals physicians in practice, people who are politicians who dont want their real names reported, said Dr. Dan Berger, medical director of NorthStar Healthcare in Chicagos Lincoln Park.
In a 2005 security breach in Palm Beach County, Fla., the names of 6,500 HIV and AIDS patients were mistakenly e-mailed to 800 county health workers. Other security breaches have occurred in California and Kentucky.
Some worry that names-based reporting could have the greatest effect on whether minorities and the poor get tested and treated because they may be less likely to trust the government to keep their names secret.
Reporting names can affect if (disadvantaged people) come back for care and it can affect how they describe to other people their experience of getting tested, said Catherine Hanssens of New Yorks Center for HIV Law and Policy.
There are an estimated 40,000 new HIV infections annually in the United States.
HIV patient names to be tracked in all 50 states by years end
The Associated Press
CHICAGO The names of people infected with HIV will be tracked in all 50 states by the end of 2007, marking a victory for federal health officials and a quiet defeat for AIDS advocates who wanted to keep patients names out of state databases.
Vermont, Maryland and Hawaii, the last states not tracking the names of HIV-positive people, are quickly moving toward adopting names-based surveillance. Washington, D.C. and eight other states, including Montana, Washington and Oregon, began collecting the names of HIV patients last year. Massachusetts switched in January.
The states are bowing to federal pressure so they wont lose money for medications and health services for patients.
This is the first year federal funding has been tied to names-based surveillance of HIV. More than $1.4 billion in federal money will be distributed this fiscal year based on new formulas that include numbers of people with HIV counted by states using names. In some states, including Illinois, millions of dollars are at stake.
Thats why advocates say theyve quit fighting although they still worry that collecting names will deter some people from getting tested and seeking treatment, and about the possibility of names being released due to security breaches.
I have patients who are very high-profile individuals physicians in practice, people who are politicians who dont want their real names reported, said Dr. Dan Berger, medical director of NorthStar Healthcare in Chicagos Lincoln Park.
In a 2005 security breach in Palm Beach County, Fla., the names of 6,500 HIV and AIDS patients were mistakenly e-mailed to 800 county health workers. Other security breaches have occurred in California and Kentucky.
Some worry that names-based reporting could have the greatest effect on whether minorities and the poor get tested and treated because they may be less likely to trust the government to keep their names secret.
Reporting names can affect if (disadvantaged people) come back for care and it can affect how they describe to other people their experience of getting tested, said Catherine Hanssens of New Yorks Center for HIV Law and Policy.
There are an estimated 40,000 new HIV infections annually in the United States.