What happens When You Have a Disease Doctors Can't diagnose?

[Deeje]

What happens when you have a disease doctors can't diagnose

Do you, or someone you know have ME?

 

[Shadow Wolf]

That doesn't make any sense to call a diagnosable disease some the doctors can't diagnose.

 

[Deeje]

That doesn't make any sense to call a diagnosable disease some the doctors can't diagnose.

It does if you watch the video.....this woman had a hard time getting doctors to diagnose what she came to realize was a relatively common yet crippling ailment, largely unknown (and even dismissed) by most doctors, even though more people have it than MS. Only by going online did she discover that she was certainly not alone.

 

[ADigitalArtist]

That doesn't make any sense to call a diagnosable disease some the doctors can't diagnose.

I can tell you that it sure feels that way to be diagnosed with IBS, which is a catch all for 'I don't know what's going on with your digestive system.' It happened that mine was a complication from hormone imbalance related to PCOS, but not everyone is that...lucky? They get 'diagnosed' with an 'I don't know' and have no idea where to go from there.

 

[sun rise]

I've known people, online and IRL, that have had this, I believe all women. And given how often women's symptoms are dismissed by the medical profession, at least in the past, it was doubly hard for them.

 

[Shadow Wolf]

I can tell you that it sure feels that way to be diagnosed with IBS, which is a catch all for 'I don't know what's going on with your digestive system.' It happened that mine was a complication from hormone imbalance related to PCOS, but not everyone is that...lucky? They get 'diagnosed' with an 'I don't know' and have no idea where to go from there.

I have IBS. No known why, but it was a pretty stressful time for me when the doctor did one test after another another after another and can find nothing wrong with me. All the major/severe/concerning things have been ruled out, and otherwise I'm healthy.

 

[Deeje]

I had a very good friend who suffered from ME.....it took years before she could resume some normal activities. It was triggered by a bout of Glandular Fever or Mononucleosis (IM), an infection commonly caused by the Epstein–Barr virus (EBV)

 

[VioletVortex]

I have IBS. No known why, but it was a pretty stressful time for me when the doctor did one test after another another after another and can find nothing wrong with me. All the major/severe/concerning things have been ruled out, and otherwise I'm healthy.

Same here. I don't care on the level that I'd see a doctor over it, though.

I have certain strange problems which aren't even documented in most medical literature.

 

[Deeje]

I think doctors these days must get very frustrated at trying to diagnose problems that are not 'textbook'. All their tests seem to turn up nothing wrong even though the patient feels like something the cat dragged in. Any wonder so many are turning to alternative medicine, (which I prefer to call complimentary medicine.) We need to lose the "them and us" mentality and realize that both have something to offer. I think a chiropractor is more useful than a physiotherapist for spinal problems and acupuncture and massage is better than pain killers. Relaxation, music and aroma therapy work better than anti-depressants. But I would go to a doctor for stitches, trauma or surgery.

Orthodox medicine is only into offering symptomatic relief via their drug therapies. It makes more sense to get to the root of the problem and fix what is causing it.

They need to put all their poisonous drugs in a big incinerator and allow us to grow our own medicine.

 

[Eliab ben Benjamin]

Undiagnosed illness oh yes, what well who can tell, after 3 years, many tests still no named diagnosis ..

Loss of weight , now down to a dangerously low BMS ... I figure its likely damage to the hypothalamus after the traumatic brain injury.
certainly the lack of taste from the loss of the olfactory process must contribute.

 

[Deeje]

Seems as if there are many suffering from phantom illnesses on this site. No wonder when you see what we are exposed to from birth. Nothing that sustains life is unpolluted.

 

[idav]

Unfortunately, for harder to diagnose ailments, one has to go through many many doctors and opinions before finding and getting to the real issue.

 

[McBell]

**puts on rubber boots**

 

[Shadow Wolf]

Same here. I don't care on the level that I'd see a doctor over it, though.

If you haven't been to a doctor over it, it can't be labeled IBS because of the many other diseases, disorders, and cancers that have similar symptoms. That's why IBS is considered a diagnosis of elimination because everything else has to first be eliminated as a possibility. It's a hassle having to go in for so many tests and screens, but it's better than potentially letting something bad fester into something worse, especially if it's something you can manage like Celiac's disease.