To Reverend Rick,
You have repeated over and over on this forum that in the USA the young, poor, disabled, and elderly get health care.
I'm poor and disabled and I'm really curious of where my awesome health care is at because I am uninsured. I have had 3 herniated discs, degenerative disc disease, spinal stenosis, and functional scoliosis (which was caused by my lower back being messed up and causes terrible muscle spasms in my upper back). I have two kinds of arthritis, psoriatic arthritis in many of my joints and osteoarthritis in my hips and knees that is causing a lot degeneration. I am also hard of hearing (Auditory Processing Disorder, APD) and have a number of other learning disabilities (LDs) related to my APD. I'm 21. My APD and LDs started from birth, my back problems started when I was 12. I have never had an accident or any trauma to my back. I am still waiting for an explanation of why all of this started for no reason so young that doesn't include the oh so scientific and medically sound diagnosis of "bad luck". Something like an endocrine disorder like Cushing's would explain everything that is wrong with me but when I brought that up to one of my doctors I was sent to a shrink against my will.
I have had three majour back surgeries. My first was when I was 15 and for L4/L5. I got an MRI on Thursday. The next day, Friday, I was at the surgeon's office. I remember this very clearly because Friday was my 15th birthday. The surgeon looked at my MRIs, expressed disbelief I had actually walked into his office. I was sent home with a list of things that could happen to me (like loss of bladder control) that I would have to call an ambulance for to take me to the hospital immediately. Monday morning (three days after that Friday) I was in surgery having a laminectomy. A wait time that short is almost unheard of. When I was opened up on the operating table the surgical team lamented the fact they did not have consent to video-tape the surgery as this was one of the worst herniated discs they had seen and my surgery took place at a teaching hospital. I lost a lot of blood and required some. My second back surgery a year later. It was a microdiscectomy for L5/S1, and wasn't as severe as my first disc. A couple years ago I had a surgery to put a pacemaker like device in my back to control pain, that surgery failed. I got a spinal fluid leak for a week and an even more screwed up back because of it. This is when I lost my insurance and they "forgot" to tell me about it. After that I blew another disc, L3/L4. It is still untreated. I had more treatments and then learned I had lost my health insurance and now was in massive debt from the bills I ran up when I thought I still had health insurance. I lost my insurance because my health insurance, after saying I could have insurance while I took a year off University decided to go back on that. They refused to reinstate me after I jumped through all the hoops to be listed as a disabled dependent of my mother. They decided to make up more paperwork and wanted me to go through a test that costs thousands of dollars and no, they weren't going to pay for it and I couldn't afford it. I have no been able to return to University because of the staggering debt I am in, not to mention the pain.
Now, I do not qualify for Medicaid because my mother makes too much. Nevermind that all that cash we're supposedly rolling in is going to my massive medical debt from the past 5 years or so.
I applied for Disability benefits earlier this year. I was having a back pain episode then. I could barely sit through the application process and ended up half laying on the woman's desk at the end of it. I gave them all the scans and test results and documentation I had. I told them all my medical history and every doctor I have ever visited. I was told I had presumptive approval. I thought all was going well until months later I got a rejection notice saying that while my disabilites cause pain, they aren't making me disabled. Nevermind that half of the time I can't get out of bed, maybe if I just pulled on my bootstraps a little harder I could pull myself up out of this. I started calling lawyers. None of them would take my case because I haven't been able to afford to go to a doctor for quite some time and get more recent tests done so I wasn't under a doctor's care. Keep in mind that all my conditions are degenerative and incurable- they have not magically gotten better since the last time some doctor waved his hands over me and declared "Bad Luck!" It is extremely hard to get disability for back conditions because they are very common BUT if you have had surgeries and multiple doctors visits and have tried many things to manage the pain (like having steroid injections, using a TENS unit/the pacemaker device I tried to get installed in me, etc) you have very good chances of getting disability- but even though have done ALL OF THOSE it just wasn't good enough and I can't afford to get them all done again now.
I obviously can not afford private insurance because I'm in massive debt and my many pre-existing conditions- I have pretty much every pre-existing condition they ask about.
There are other programs in my state for the uninsured that I have applied for, but I'm never getting in. The wait list is insane.
Right now I am having a back pain episode and have had it for over a week. I have been stuck in bed and going from being able to maybe crawl to the bathroom to unable to roll over in bed to a more comfortable position. I only had naproxen to take and I was taking 2 to 3 times the maximum dose because that is all I had. Doctors won't describe me painkillers for mostly being a woman and therefore all the pain just being in my head and I need to take antidepressants. Other excuses range from me drinking tea causes my back pain (***) and that "if you have painkillers then you won't be in pain and then you will move around and injure your back further!" There's the old standby of "you're too young to have painkillers" and "you'll get addicted!" If I get addicted to painkillers that might be helpful because I will be in pain for the rest of my life. Oh, and also, I have drug seeking behaviour because I go to the doctor and say I'm in pain and wish to have something to alleviate that pain, apparently I should have just gone in and went "Oh, gosh gee willy whiz wow, I am in pain WHATEVER SHALL I DO?" It also really sucks that there are only two things that completely alleviate my pain. One is horseback riding and there are no places to do hippotherapy around here and my own horses are not completely saddle-trained because I had to have a back surgery before I finished training them and I am just not in any shape to do that now. It helps because my left leg is way shorter than my right and my hips are out of alignment- riding a horse is almost like walking, the same muscle groups are used- and I can't walk normally because of the leg and hip thing so walking just hurts me more. The other thing that works for my pain is illegal in my state for medical use but not in places like... California. I think you know what I mean now. But that's another rant for another time.
On Sunday I didn't sleep that night because of the pain and at around seven in the morning I started screaming and couldn't stop because of the pain. Both of my arms started hurting along with everything from the middle of my back down. My mother took me to the hospital even though we can't afford it and they were going to run unnecessary tests- which they did. I had two sets of x-rays, lower back and neck, which are meaningless and just showed more degeneration of my bones (Duh). At this point, only a MRI will show anything meaningful. At least I was shot up with toradol, painkillers, and muscle relaxers so now I can actually move around without being in total agony. (Oh, btw, if you're crazy hard to get an IV in like I am, ask for a male nurse. Most murses are from a military background so they are already crazy good with getting IVs in in chaotic situations from, you know, doing it in a war. I've also never had a murse be mean to me. <3) I'm also now the proud new owner of a pinched nerve somewhere in the upper part of my spine or neck- that's what was causing the arm pain. Oh, and the proud owner of a brand new expensive bill.
So now... I have nothing. I'm in more and more pain every day and have exhausted all of my options. I also am developing more symptoms of other conditions- I have had severe pain in my right flank for almost a year, surprisingly enough they aren't kidney stones which I had a couple years before. I can't work when I can't get out of bed and I am in so much pain I can't think most of the time. I'm here at 4:30 in the morning writing this because I hurt too much to sleep.
So, to sum this all up, I would just really appreciate if you would stop saying how well taken care of I am in the Good Ol' USA.
A lot of other awesome people in this thread have made some fantastic arguments and points of why we need health care reform, you might want to start listening to them. I would just be repeating them if I talked about that. I just posted this because if I heard you say that the disabled in this country are so well taken care of one more time I was going to kick a puppy.
We need health care reform and we needed years and years ago. There are many people with all kinds of conditions who are stuck in the same place I am with no hope.
Hugs & Kisses,
Maesi <3